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Rare Disease Day
Results: 254

#	Item
121	Rare Disease Day 2014 Improving Access to Rare Disease Care: The Vision of Patients Add to Reading List Source URL: download.rarediseaseday.org.s3.amazonaws.com - Date: 2014-02-19 09:36:50
122	Basel, March 2, 2012 Media release RARE DISEASES: PATIENTS AND RESEARCHERS MUST WORK TOGETHER MORE CLOSELY Add to Reading List Source URL: www.react-congress.org Language: English - Date: 2012-11-23 05:51:19 Medicine Rare disease European Organization for Rare Diseases Clinical trial Disease Rare Disease Day Epidemiology Health Science
123	CORD Fall/Winter 2013 Newsletter v4 Add to Reading List Source URL: www.raredisorders.ca Language: English - Date: 2013-12-16 16:10:40 Pharmacology Canadian Organization for Rare Disorders Rare disease European Organization for Rare Diseases Durhane Wong-Rieger Rare Disease Day Orphan drug Medical cannabis Health Medicine Pharmaceuticals policy
124	Rare Disease Day “Join Together for Better Care” Improving Access to Rare Disease Care: The Vision of Patients Brussels, 25 February 2014 Résidence Palace, 155 rue de la Loi, 1040 Brussels Add to Reading List Source URL: download.rarediseaseday.org.s3.amazonaws.com Language: English - Date: 2014-02-24 10:02:26 Rare disease Syndromes Prader–Willi syndrome Health European Organization for Rare Diseases Rare Disease Day
125	Common Goals & Mutual Commitments between National Alliances in Europe & EURORDIS: An agenda between 2014 & 2020 EURORDIS & National Alliances aim to the best of their ability and in accordance with available resources t Add to Reading List Source URL: www.eurordis.org Language: English - Date: 2014-02-20 09:57:05 Science Rare diseases Greek Alliance of Rare Diseases European Organization for Rare Diseases Rare Disease Day Health
126	Public Consultation on a possible revision of Council Directive Respondent profile Please indicate the type of organisation on behalf of which you are responding to this consultation: Add to Reading List Source URL: ec.europa.eu Language: English - Date: 2012-10-18 13:28:12 Pharmaceuticals policy Pharmacy European Medicines Agency Pharmaceutical industry Rare Disease Day Regulation of therapeutic goods Orphan drug European Organization for Rare Diseases Rare disease Pharmaceutical sciences Pharmacology Health
127	DRAFT #2 FOR REVIEW For Immediate Release February 28, 2013 Rare Heroes Applauded at Annual Rare Disease Day Gala Celebration -‐ Add to Reading List Source URL: www.raredisorders.ca Language: English - Date: 2013-03-02 02:17:57 Childbirth Stem cells Rare disease Rieger Canadian Organization for Rare Disorders Pharmaceuticals policy
128	Internal Rules Council of National Alliances (CNA) Since its creation, EURORDIS has encouraged and supported the creation of National Alliances for Rare Diseases progressively in all EU member states and beyond. Currentl Add to Reading List Source URL: www.eurordis.org Language: English - Date: 2014-02-20 09:57:35 Health Science Alliance Government European Organization for Rare Diseases Rare Disease Day Rare disease
129	Special Thanks HERO LEVEL CANADIAN ORGANIZATION FOR RARE DISORDERS Rare Disease Day Add to Reading List Source URL: www.raredisorders.ca Language: English - Date: 2012-09-26 13:04:28 Pharmaceuticals policy Lipid storage disorders Neurodegenerative disorders Durhane Wong-Rieger Rare Disease Day Orphan drug Niemann–Pick disease European Organization for Rare Diseases Health Rare diseases Canadian Organization for Rare Disorders
130	Canadian Organization for Rare Disorders • 5th Rare Disease Day Conference “From Worst to First: Transforming the Rare Disease Experience in Canada” February 27-28, 2013 • Pantages Hotel Toronto, 200 Victoria St Add to Reading List Source URL: www.raredisorders.ca Language: English - Date: 2013-02-25 14:17:35 Science Rare disease Pharmaceuticals policy European Organization for Rare Diseases Canadian Organization for Rare Disorders Rare Disease Day Orphan drug Durhane Wong-Rieger Disease Health Epidemiology Medicine

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